Nigerian Journal of Clinical Psychology, 14( 1): 181-192, 2024

PSYCHOLOGICAL DISTRESS AMONG INFORMAL CAREGIVERS OF CHILDREN WITH AUTISM SPECTRUM DISORDER: A SYSTEMATIC REVIEW

Dorothy John Okoro, Aniedi Peter Etuk, James Robson Sunday, Gboyega E.Abikoye

Abstract

Taking care of children with autism spectrum disorder (ASD) is extremely demanding, both physically and mentally, and can have a negative impact on the family. It takes a lot of time, effort, and patience to meet the extra care needs of the affected children. This often causes parents and other informal caregivers to experience psychological distress, depression, and other mental health issues. The databases reviewed for this literature review included CINAHL, PubMed Google Scholar and other Open Access gray literature. The literature searches took place between September 2023 and January 2024. A total of 2,605 studies were identified. Of these, 91 Randomized Control Trial studies met the inclusion criteria, and 14 had sufficient data to conduct a systematic review including subgroup analysis. The result of the reviews showed that informal caregivers of people with a autistic spectrum disorder are at increased risk of developing depression, anxiety, and stress, so preventive interventions are need.


Keywords: Autism Spectrum Disorder (ASD), Caregiving, Informal caregivers, Family impact, Psychological distress, Mental health, Depression, Anxiety


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